Although the implementation of community data governance is still in its early stages in Canada, emerging efforts are shedding light on practical steps to facilitate community ownership of data.
This report presents and analyzes five case studies on health organizations and institutions that are currently implementing community data governance. The experiences and lessons learned by these early adopters can serve as a practical roadmap for others, guiding effective action planning and strategic development.
Production of this report was made possible through collaboration and financial support from the Canadian Partnership Against Cancer Corporation and Health Canada. We would like to acknowledge the partner organizations for sharing their experiences for this initiative. These include ICES, Hamilton Health Sciences’ Equity, Diversity and Inclusion Department, and the Office of Anti-Racism, Equity and Social Accountability at Unity Health Toronto.