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Work experiences of people with long COVID in the GTA

A previous paper by Wellesley Institute on the healthcare experiences of people with long COVID in the Greater Toronto raised the importance of healthcare providers in supporting workers to access benefits, sick leave and income supports when needed. Reviews of qualitative research on long COVID have also identified financial hardship as a challenge for many people with long COVID.

Estimates from the US in 2022 suggest that of the 16 million working age adults with long COVID, between 2 and 4 million are not working due to their condition. The economic impact in that country has been estimated at as much as $200 billion per year. Despite these projections, research on the experiences of people with long COVID suggest that they are not receiving the support they need from employers. People living with long COVID have also reported limited workplace understanding of the impact of their symptoms in limiting their ability to work. At the same time, the ability to take time to rest or pace oneself during activities such as work has been identified as an important element of recovery from long COVID.

The policy implications of the findings presented in this report have been developed in a companion piece. This piece outlines specific actions to be taken to address long COVID work-related challenges. The general areas of recommended policy action relevant to work are as follows:

1. Mobilize knowledge to increase awareness of long COVID and how it impacts workers.

2. Develop implementable workplace plans to support workers with long COVID, including provision of worker-centered accommodations.

3. Increase access to paid short- and long-term sick leave for all workers.

4. Improve equitable access to workplace benefits that support symptom management and treatment for workers with long COVID, including mental health supports.

Work experiences of people with long covid in the GTADownload
Sarah Sanford

Sarah Sanford

Dr. Sarah Sanford (she/her) is a qualitative researcher with a background in critical social sciences, global health governance and public health. She has worked across numerous applied health research and policy settings over the past 15 years, and most of this work has centred lived expertise in developing solutions to promote health and health equity. She has recently cultivated her thinking about the economic determinants of health and is currently researching wealth inequality and health equity in Toronto. Sarah holds a PhD from the University of Toronto and a Master’s degree from York University.

Brenda Roche

Brenda Roche

Dr. Brenda Roche is Director of Research at the Wellesley Institute. She was a Post-Doctoral Research Fellow in Anthropology and Health at the Gender, Violence and Health Centre of the London School of Hygiene and Tropical Medicine. She comes with academic and community-based research experience exploring social and health issues in urban settings, including homelessness, sexual health, violence and psychological trauma and distress. Her doctorate, through the London School of Hygiene and Tropical Medicine, examined discourses on trauma that operate within the context of refugee resettlement, and how these influence health and social care practices for women (and their families) seeking political asylum in the United Kingdom.